The National Organization for Rare Disorders (NORD)


Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,150 diseases.

Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

Rare Disease Database

Search this database for reports on more than 1,150 diseases.

View sample report

Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office

Check here to read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

 

NORD Events

NORD 20th Anniversary Gala

This year marks the 20th anniversary of the Orphan Drug Act, one of the most successful pieces of healthcare legislation ever enacted. It is also the 20th anniversary of the formation of NORD, the National Organization for Rare Disorders. To celebrate these anniversaries, NORD is mounting a year-long program of activities to raise awareness of rare diseases and support research. These activities will include an international scientific symposium, regional conferences with patient groups, and an educational campaign for patients, the public, and healthcare professionals.

A highlight of the year will be our 20th Anniversary Tribute Banquet on Monday, May 19, in Washington, DC.

NORD 2003 TRIBUTE BANQUET
20th Anniversary Gala

Date: Monday, May 19, 2003

Location: Capital Hilton Hotel
16th & K Streets, NW
Washington, DC 20036

Reservations: (202) 393-1000

Room Rate: Single/Double
$226.57 (plus tax)

Cut-off Date: Thursday, April 17, 2003
(Please make your reservations early to guarantee room rates)

For further information: Contact Donna Bolton in NORD's Development Office at (203) 744-0100

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ABOUT | CONTACT NORD

Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

NORD's Conference is fun and educational for all ages

NORD’s Conference is fun and educational for all ages

One of 100 Best Charities

Worth Magazine has chosen NORD as one of the 100 best charities in America.

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Tribute Banquet
NORD honors members of Congress, scientists, and pharmaceutical firms for advances in rare-disease therapies at its annual Tribute Banquet in Washington, DC.
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Last modified Wednesday, November 05, 2008