The National Organization for Rare Disorders (NORD)


Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,150 diseases.

Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

Rare Disease Database

Search this database for reports on more than 1,150 diseases.

View sample report

Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office

Check here to read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

 

NORD Events

NORD 25th Anniversary Gala

Date: Tuesday, May 20, 2008

Place: Union Station (East Hall), Washington, DC

Time: Cocktail reception at 6:30 pm; Dinner at 7:30 pm

May 20, 2008, will be a special evening indeed! Our celebration of the 25th anniversaries of NORD and of the Orphan Drug Act will be a landmark event, looking back on a quarter century of progress and looking ahead to many more years of medical breakthroughs. Never before or since the Orphan Drug Act has there been such a direct and beneficial relationship between federal health legislation, the patient community and the pharmaceutical industry.

Make your reservations online now!

Download the appropriate form:

Sponsorship Form (includes table/seat reservations)

Table/Seat Reservations (does not include sponsorship)

Sponsorship Opportunities

Based on the level of sponsorship selected, companies will receive seats at the Gala, an ad in the commemorative journal, Gala signage, and special recognition in NORD publications. Questions about sponsorship should be directed to Donna Jackson in the NORD Development Office (djackson@rarediseases.org or 203-744-0100).

NORD appreciates the generous support of our Corporate Sponsors for our 25th Anniversary Gala. It is an expression of their appreciation for NORD’s 25 years of dedicated service to the rare disease community, and an acknowledgment that much remains to be done in the future.

Railroad Barons
Allergan, Inc.
Celgene Corporation
Rare Disease Therapeutics
Recordati / Orphan Europe
Sigma Tau Pharmaceuticals

Station Master
Acorda Therapeutics, Inc
Agvar Chemicals, Inc
BioMarin, Inc.
Genzyme Corporation
Sanofi-Aventis US

Conductor
Accredo Health
Actelion Pharmaceuticals
CSL Behring
Novartis Oncology
Shire Human Genetics
Teva USA/Teva Neurosciences

Engineer
Biotechnology Industry Organization
Barr Laboratories, Inc
Ikaria
Questcor Pharmaceuticals

Passenger
Amicus Therapeutics

Reservationist
Baxter Healthcare
Mission Pharmacal
Ovation Pharmaceuticals
Prestwick Pharmaceuticals

Signalman
Argent Development
HPS Group

Flagman
Solakian, Caiafa & Co., LLC

Reserve a Table or Seat

Each reservation includes a line listing in the commemorative journal. The cost of a reservation is:

Gala Nonprofit Seat: $150
Gala Corporate Seat: $500
Gala Table (10 Seats): $5,000

Questions about reservations may be directed to Donna Jackson (see above).

Commemorative Journal Line Listing

As a NORD benefactor, supporter or friend, place your congratulations on the Greeting Page of NORD’s 25th Anniversary commemorative journal.

Individual: $25
Nonprofit: $50
Corporate: $150

For additional information, contact Donna Jackson (djackson@rarediseases.org or 203-744-0100).

Hotel Accommodations

NORD has a limited number of rooms reserved at two hotels in Washington, DC. Please contact them directly to make your reservations. NORD will not have access to additional rooms once the room block is filled.

The Capital Hilton
16th & K Streets, Washington, DC

NORD has limited room block at a rate of $329 per night. These rooms are reserved under “The National Organization for Rare Disorders.” For reservations, call (202) 383-1000 by April 10th to receive this rate.

The Melrose Hotel Washington DC
2430 Pennsylvania Avenue NW

NORD has a limited room block at a rate of $279 per night. These rooms are reserved under “NORD”. For reservations, call (202) 955-6400 by April 10th to receive this rate.


NORD Annual Conference for 2008

Watch this space for information on the NORD Annual Conference for 2008 to be held this fall.

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ABOUT | CONTACT NORD

Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

One of 100 Best Charities

Worth Magazine has chosen NORD as one of the 100 best charities in America.

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NORD's Conference is fun and educational for all ages

NORD’s Conference is fun and educational for all ages

NORD Tribute Banquets

At it’s annual Tribute Banquet, NORD honors members of Congress, medical researchers, pharmaceutical firms and other individuals who have improved the lives of people affected by rare diseases.

2007 Tribute Banquet
Photos | Honorees

2006 Tribute Banquet
Photos | Honorees

2005 Tribute Banquet
Photos | Honorees | More

2004 Tribute Banquet
Photos | Honorees

2003 Tribute Banquet /
20th Anniversary Gala

Photos | Honorees

2002 Tribute Banquet
Photos | Honorees

Prior to 2002
Honorees

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©2006 NORD - National Organization for Rare Disorders, Inc. All rights reserved.

Last modified Friday, March 21, 2008