The National Organization for Rare Disorders (NORD)


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Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

Rare Disease Database

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Index of Organizations

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Organizational Database

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NORD's
Washington Office

Check here to read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

 

News Briefs

Gulf War ALS Study Results Reported

Veterans deployed to the Persian Gulf in the 1991 Gulf War have developed ALS (amyotrophic lateral sclerosis) at a rate that is twice as high as that among veterans not deployed, according to a study published in the September 23 issue of the journal, Neurology. Sometimes called "Lou Gehrig's disease", ALS kills brain and spinal cord cells that control muscle movement, resulting in gradual muscle wasting and loss of movement. It usually strikes those between the ages of 40 and 70, and affects as many as 30,000 Americans at a given time.

The ALS Association served as a consultant to the departments of Defense and Veterans Affairs, which conducted the study. The intent was to identify all occurrences of ALS in the military since the start of the Gulf War. The Sept. 23 issue of the journal includes two articles on the Gulf War ALS study, along with an editorial cautioning that the total number of cases of ALS in the study was small.

A National Registry of Veterans with ALS has been established. For information, go to www.rarediseases.org/research/clinicaltrials.

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Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

Previous News Briefs

ICORD 2008

FDA and European Union Adopt Shared Form

NORD Representatives Address Congress

CETT Increases Access to Genetic Tests

NORD Honors Innovators at 2007 Tribute Banquet

FDA Approves First Product for PNH

NORD Staff and Rare-Disease Researchers Describe Their Work for Wife of President of Germany

A Common Lesson of Rare Diseases

NORD Issues RFPs

Deadline Announced for Grant Applications

Conference in Korea Focuses on Rare Diseases

FDA Approves Revlimid For Multiple Myeloma

Penn Researchers Pinpoint Cause of FOP

FDA Approves HDE for Rare Disorder of Placenta

CFC Genes Identified With Help of Patient Organization

Saving Andy Martin’s Cells

Haffner Honored by Royal College of Physicians

NORD President Honored For Health Advocacy

NIH Opens New Clinical Research Hospital

Gulf War ALS Study Results Reported

Researchers Identify Progeria Gene

Dystonia Patients Gain Access to "Brain Pacemaker"

Scientists Block CJD-Like Illness in Mice

Genetic Signature Linked to Severe Lupus Symptoms

Genes Linked to Methylmalonic Aciduria Identified

French Researchers Claim a Cure for Severe Sickle Cell

NF1 Research: When a Good Gene Goes Bad

Thalidomide Shows Promise

For Smallpox: Vaccine Production on Target

NORD Member Organization Update August 2002

FDA Approves New "Orphan Drug"

Supreme Court Narrows Disability Law

Dramatic Results Reported in Stiff Person Syndrome Study

Gulf War Vets Have Higher Rate of ALS

Diseases of Bioterrorism

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Last modified Monday, June 02, 2008