NORD - National Organization for Rare Disorders, Inc.

• Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,150 diseases.

• Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

• Rare Disease Database

Search this database for reports on more than 1,150 diseases.

View sample report

• Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

• Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

Genzyme/Allston Runners
Raise Funds for NORD

Employees from the Allston, Mass., facility of Genzyme Corporation selected NORD as the charity they represented in the 2008 Boston Marathon. The Allston facility is a manufacturing center for several orphan drugs for rare diseases.

Phillip Maderia, Matt Barrows, and Rick Bodmer are joined by Hartmut Nedebock, a colleague from Genzyme’s Germany office. (A fourth Allston runner, Gary Dodakian, was also part of the team.) They chose to raise funds for NORD through their Boston Marathon run. All donations made on this page in support of the Allston Boston Marathon team will go directly to NORD programs and services for all patients and families affected by rare diseases.

Donation

	$25.00
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	$75.00
	$100.00
	$200.00
	Other amount: $

The Allston Boston Marathon Team would like to thank donors for their support. Please indicate below whether NORD may forward your name and email address to the team for that purpose. The amount of your gift will not be disclosed unless you have also give permission for that information to be shared.

	Yes, you can release my name, email address, and gift amount to the Boston Marathon team
	You can release my name and email address to the Boston Marathon team, but please do not disclose my gift amount
	No, I prefer my gift to remain anonymous.

No disease is rare when it affects someone you love. Your donation helps NORD provide information, referrals, advocacy, and other assistance to people affected by rare diseases. Your donation is tax-deductible to the extent permitted by law. Also, please be assured that NORD does not sell, rent, or exchange its donor lists with any individuals, organizations, or companies.

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ABOUT | CONTACT NORD

Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

Become a NORD Member

As a member of NORD, you’ll receive benefits in addition to the satisfaction of knowing you’re helping people with rare diseases. Read about our levels of Membership and the benefits of each.

One of 100 Best Charities

Worth Magazine has chosen NORD as one of the 100 best charities in America.

[Go to Article]

NORD Tribute Banquet
Twice a year, NORD hosts events that draw together the rare-disease community. At the Tribute Banquet, held in the spring, individuals, legislators, and corporations are honored for specific achievements.

Last modified Thursday, January 24, 2008